Blog

  • Black Magic Eyeliner — the Power of Kohl Compels You

    Black Magic Eyeliner — the Power of Kohl Compels You

    This blog started out, so many years ago, as a beauty/”lifestyle” (ugh) blog for people with chronic illness and/or pain — and I’ve sort of lost focus, on that count. I’ve been finding it impossible to just mush the three blogs I run together into one cohesive THING, because none of the things really seem… Read more

  • Channeling Fred Garvin, Male Prostitute — Corsets, braces, and K-tape for Ehlers-danlos syndromes

    Channeling Fred Garvin, Male Prostitute — Corsets, braces, and K-tape for Ehlers-danlos syndromes

    I know you’ve all been waiting breathlessly for a new post, and I’ve finally gotten it together enough to write, after trying out the Power Corset as well as a couple other things over the past few weeks. Like most people with EDS, I’ve gotten used to taking the first ten minutes of my morning… Read more

  • Walking on Broken Glass

    Walking on Broken Glass

    Disability. Now there’s a loaded word if there ever was one. Not one people like to hear in relation to themselves, or their loved ones. People get touchy about even saying it, like it’s a dirty word. And words carry power — a fact any Writer knows very well. They carry the power and importance… Read more

  • Black and White and Zebra Blues

    Black and White and Zebra Blues

    Hello, Powers That Be? I’d like to return this body, please. I don’t have a receipt because it was a gift…but I’d like to exchange it for one that works. Things seem to be tanking at a rather alarming rate. Pain is at an all time high, my ribs are wonky and feel out of… Read more

  • Post-diagnosis Blues

    Post-diagnosis Blues

    Recently, I was diagnosed by both my GP and a specialist with Ehlers-Danlos Syndrome Hypermobility type; and while the diagnosis is new, my condition is not. I have, in fact, had it since birth. Technically I had it in utero, as it’s a genetic disorder, but you get my drift. Getting this diagnosis was in… Read more

  • Ehlers-Danlos — The Zebra in the Room

    Ehlers-Danlos — The Zebra in the Room

    I’ve always envied people who blithely traipse through life with bodies that do what they’re supposed to do, get 8 or even 6 hours of restful, uninterrupted sleep, and don’t experience debilitating pain on a daily — nay, hourly — basis. But, one thing I’ve always been pretty happy about is my body’s flexibility, even… Read more

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